2013 Boston Marathon?

Ever wanted to run this historic marathon? Does the thought of 26.2 grueling miles of foot power get you pumped? Then check this…

The good news:

Mass General gets a handful of numbers each year to help their various departments. The Mass General CF Center gets some of those numbers and for a commitment to raise a mere $3000 for the CF Center at MGH you can get your sweaty hands on a number! True dat!

The bad news:

All the numbers have already been snapped up by endorphin freaks. Don’t despair, however, shoot us an email and we’ll put you on the call list in case somebody sprains their ankle. I guess there are always a few casualties before the big day in April.

Thank you for reading this.


Rock n Bowl Eleven a SMASH!

A grand time was had by all and over $3500 was raised to combat CF!

Rock n Roll thanks to the Bi Polar Bears, Red Sky Mary, Truffle, The Hollow Glow, Broggi Field, Tim McCoy & The Papercuts, Supermachine, and Heavens to Murgatroid for donating their time to help Trevor. Great Production thanks to Bill Toland, Chris McCoy, Tim Healy, Rob Ficara, Chad Boivin, Tim Theriault, and Shelley Toland for their dedication to producing such a fun event!

Trevor had a doctor’s appointment the Monday following the event and his PFTs went down a bit. Needless to say we were disappointed. But, we know that so many people are trying to help cure CF that we will harness that energy and hold it within us.

Thank you to all who came out to spend a night rockin’ and bowlin’–without you it wouldn’t be possible.

SAVE THE DATE! Rock n Bowl, November 17th

Join us in the 11th year of this event…

November 17th, Shooter’s Pub, Exeter, NH

2012 Band line-up:

Bi Polar Bears


The Hollow Glow

Red Sky Mary

Broggi Field

Tim McCoy & The Papercuts


Heavens to Murgatroid

Doors open somewhere around 4:30pm and you can stay until we all get kicked out! It’s a fun evening filled with charity, rockin’ sounds, a swell raffle, local rock luminaries, and bowling! Come on, you know you can’t find all this in one place. Come help Team Trevor defeat cystic fibrosis~pretty please?

Information for Shooter’s Pub can be found here.


EPIC Olivia

Olivia started and finished the entire EPIC journey…2.5 miles by kayak, 157 miles by bike, 26.2 miles by foot, completing her extreme challenge with ease…And, she raised over $2,500 for Team Trevor along the way. She is truly EPIC!

Surgery Tommorrow!

Part two of the big ONE TWO summer plan is finally happening. You see, in June, Trevor was supposed to have his bronchoscopy and PICC line~then his cleanout (2+ weeks IV antibiotics in hospital and at home). And then he was supposed to have a

bilateral endoscopic maxillary antrostomy, ethmoidectomy, spenoidotomy and possible deviated septum-fixology (sp, hah!)

Part two (above) didn’t happen because it took Trevor a couple of months to get back to baseline after the PICC line, anti-fungals, strep throat, and rest of summer. We are now mid-November and we cannot put it off any longer. Dear boy can’t breathe, can’t blow his nose (it all drips down his throat), oftentimes loses his sense of taste (rude!), and has terrible throat irritation from constant throat clearing.


So, tomorrow we will trek into Boston to see good doc Donald Keamy at Mass Eye and Ear Infirmary. One night at the Ritz, whoops, I mean hospital, and then home on Saturday~if all goes well.