We are at 1216 Facebook likes. The last time we asked for your help getting more likes (which helps us tell more people about Trevor and life with CF) you all stepped up and helped propel us up over 1200 likes.
Today I’d make the same ask plus one: share us and donate, if you can. Why? Because the older a person with CF gets the more difficult maintaining healthy lungs becomes. More hours spent doing breathing treatments, more hours spent doing chest PT, more pills taken to combat infections, more trips to MGH to see the pros. Just more. The older I get the more I want to swear about this because I cannot believe we are still stuck with major progress for Trevor. Yet we are.
So, let’s raise some awareness. Let’s raise some donations for research. We are determined to make this happen. Insert swears here.
Visit www.facebook.com/cfteamtrevor to like us and www.teamtrevor.org to donate. We thank you tons.
What has Team Trevor HQ been up to you ask? Well let me tell you about it…
Do you remember what you were doing on December 2nd 2015? It was six days after Thanksgiving, there was Christmas music playing, lists were being made, there was lots to do. I cannot believe that this medical saga has been going on since then.
Trevor was in the hospital for 12 days. We didn’t know he was going to be tethered for this long so we let them put the PICC line in his dominant arm. He soldiered through sinus surgery on day 8 of his incarceration. Remember his throat being messed up for the following week after surgery? Yup, that also happened and it feels like a million years ago.
We had meds delivered every week from the compounding company. A nurse came by every week to take vitals and change the PICC dressing. An IV pole stood sentry in the kitchen this entire time. It has now been moved to the attic.
We went to MGH for rechecks 4 times. We said goodbye to 2015 and hello to 2016. It feels like a million years have passed. Hiss PICC line got pulled on February 1st. Only 24 days ago. Time stood still for 9 weeks.
Trevor endured 106 IVs. One hundred and six. We have aged a million years in 9 weeks.
Thank you for supporting us. Enduring this ordeal flanked by family and friends is the only way to go. We know we are fortunate to be held up by you all. And we are so proud of Trevor for his stoicism. We look forward to the day when he can enjoy modern medicine’s miracle meds…
Now that we are playing catch up on life we are looking forward to our upcoming Team Trevor events. Stay tuned for the line up–we always love to see our friends. #BeatCF
Trevor had managed to stay out of the hospital since July of 2014, which is great. However, it appears we waited too long and the bugs have had a chance to take over more real estate. Trevor is now at Mass General being infused with hardcore antibiotics to combat some dastardly bacteria. He is bored. He doesn’t feel well. He’s missing lots of school. And it’s supposed to be the Christmas season. It doesn’t feel very Christmassy. Between PICC lines and chest PT, IV infusions and rounding doctors, it leaves little time to step back and be grateful for all the good things in life. Sinus surgery is on the docket for the 10th for Trevor. Here’s hoping by then the meds have started working and that the sinus surgery helps reduce the burden on his body. May good health favor you and yours–it really is a gift.
It’s right around the corner…4 more days! Remember last year’s walk? We hope to see you at 9am on Sunday, May 17th at the York Beach Fire Station. 3 lovely miles along Long Sands Beach–walking to raise money to cure CF! For more information visit our Team Trevor Great Strides page here. #BeatCF
Always love when you get backed by a big partner–in this case Dunkin’ Donuts sharing their air time with building awareness for the CF Foundation. And, you have to love when you see your kiddo on TV helping to spread the word. Check in out:
Keep your eyes open during the month of April when watching WCSH-6. They will be running a spot to raise awareness for the CF Foundation. The gentlemen the station sent to work with us were lovely and it was fun to see how things are made for TV. We can’t wait to see how they can possibly edit down all the footage they shot into a 30 second spot. Pictured below are Jeff & Kyle at Kittery Dunkin’ Donuts and in our kitchen.
We are always sentimental this time of year thinking about the incredible help we’ve received from Trevor’s fantastic supporters over the year. We hope you know how much we sincerely appreciate the participation, the donations, and the volunteerism we’ve received.
While I can personally attest that there is nothing more we’d like from Santa than a cure for CF all wrapped up under the tree–we are content and hopeful that good things will happen. In the meantime, we promise not to stop funding the cure.
Happy New Year and may good health and happiness find you and yours!